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AFM: After her son's paralysis was infused, a mother turned to polio that survived for answers



B & B in 2012; , and her 1-year-old son, Lucian, had been paralyzed from her narrowly. Although he was getting good medical care from his doctors in California, she and her husband had a Desires support and emotional guidance that may only come from parents of a child such as Lucian.

But that's the problem. Lucian was one of the first children in the United States that was diagnosed with a paralyzed disease called myelitis droma flaccid, or AFM.

Even on Facebook, it's not His mother can get kindly moments.

Then, one day, a classical classification gave Olivera a solution that confirms that history is sometimes repeated.

Olivera was the last semester of her nursing school, and she was invited to visit a support organization that meant her life. She chose a support group for people who came from polio, from which her son's disease and polio are similar.

Members of that support group – old people who suffered long-term disease since their abolition in the United States – would never last their life.

AFM and polio: eerie scenes

In the late 1940s and early 1950s, more than 35,000 people had declined polio every year, which means that this is one of the fears in the 20th century fear, according to the United States Centers and Disease Control.

Polio and AFM are similar in ways: Experts believe that both families cause viruses both. Most patients, and most children, Starting with cold or flu symptoms, and then paralysis strikes.

Those who survive from rare polio disease are now successful
Since 2014, there are 440 cases of AFM in the United States in 46 states, according to the CDC. The average age of patients is 5 years old.
Thanks to the polio vaccine, the USA has been free polio since 1979, according to the CDC.

But there is no cure or vaccine for AFM, and healthcare practitioners need to do the best ways to take care of these children themselves.

Some have gone back to polio to help their patients. Melissa Murray, a corporate developer in Oregon, wrote ancient medical articles about polio to find out what exercises he gave to the patient, Bailey Sheehan, who was diagnosed with AFM in 2014 at age 7. Her whole side was parasitic.

"I was not sure and somewhat weird, because I wanted to help, but this is a bit of parameters," said Murray. "I never thought I'd go back in time to read about polio."

Bailey, now 11, suffers often on the head of her head, and is weak in her head; her right arm, but she can walk – something her mother believes in Murray's historical research. "Melissa and its resources – I believe that that is 100 percent why Bailey is going to walk again," said Mikell Sheehan.

Bailey Sheehan's corporate teaser, Melissa Murray, looked after polio children to help Bailey recover from AFM.
He looks back in time to get medical wisdom from earlier disease, such as Murray and others made by AFM, "amazing", according to David Oshinsky, a history professor at the University of New York, and author "Polio: Story American," who won the Pulitzer Prize for history in 2006.

"For me, that's amazing. I have never seen such a connection," he said.

Lessons from the last

When Olivera gave her son to the Polio Mail Members Support Group meeting at the Thousand Oaks community center, she first thought that she might have made a mistake. These people were more than fifty years older than her son – how would they really help them?

Then she saw one of the people living in a polio, sitting in a wheelchair with a motor, lift her turn up to grab her & # 39; skin on top of its furniture, maybe it's likely to be & # 39; raising a puppy with her roof.

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It was a very special move; who knew Olivera, because Lucian so moved his leg too.

She knew she was in the right place.

So the polio did survive.

"When the boy was seen we gave us memories. It was like déjà vu," said Sherrill Boyd, 79, who was polio when she was 9.

A living document came from her & # 39; public, some of it very well with an accident. When Lucian caught up his sheel and put her legs up aboard, Olivera, who was a favorite girlfriend, was a girlfriend. The police will smile.

"They said," He stretches his leg. We too It's good! "" Olivera remembers. "So now I'm saying – to break up all current rules!"

How Norma Puch looked Lucian and her; hearing his story, he would recall his own story. She and Lucian got ill when they were very young – 18 years old was a 18-year-old pig and Lucian was 11 months old. Like Lucian, she's throwing a banner on her left foot from ankle to hip.

When he saw it he remembered his case when she was a young woman working as a receptionist at the Los Angeles construction company. One day she went out to wait for her. She had a classic 70 minister.

"Hey, cover that up," said a traveler.

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He was describing his & # 39; her legs.

"I was so tired – I thought the tailor!" Remember Puch, who is now 65. "I should be embarrassing because I have the metal thing on my leg?"

She told Olivera not to listen to the enemies, and to think about Lucian as if it were like any other child.

"When I was a girl, I did not think of myself as different or threatening, although I could not walk as fast as other children," said Puch.

Olivera advised that she and her husband had to deal with Lucian just like her other three brothers.

"Up to that point, we got it in a bubble. We would always keep it on, or it was always on us. But that did not help it, "she remembers. "After the meeting, my husband talked and we decided we did not build Lucian for being a disability. We were going to build Lucian to be living with a disability. "

Today, at 7, Lucian is a little happy boy, without signs of self-pity. He will walk with her & # 39; His banner and a coach or a scoot on the floor. He does work like his brothers and sisters, but in a modified way – for example, to clean his room, he will Take toys from the floor and put them in a sack connected to the pedestrian, and then put them back on the shelf.

Without trying to lose the wisdom of their oldest generation, Olivera has arranged for Kurt Sipolski, a memorandum polio distributor, "Too Early for Flowers," on board a group that she created for parents children with AFM. Sipolski will give advice to the new generation of parents who are in a position. children living with paralysis.

After the meeting, one of the people who lived in a polio knife of Lucian wool socks put on one side, because people with paralysis often have cold legs.

The socks have become a shelter for Olivera from a day to change his life.

"That meeting gave me confidence and gave me such a vision," she said. "Everyone said that polio was limited to their success. They had jobs. They had families. They gave me Lucian to see those things too."


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