THE NUMBER OF THE FIBROSIS IN LA LAZIO – But let's go in order. so far Lazio there are about 600 cystic fibrosis patients – an 10% of Italian elasticity – genetic disease is considered "rare"That did not give at least the 80s great expectations of life. Over time, however, research has been making a great deal of progress and before the beginning of the century, children overcome the 20 year strategy. Today, according to the information provided by Lifc, the normal life It has risen to date 40 years, even if there is a successful patient over the age of 60. Generally, about it 55% of patients aged 18 years old. The early 90s Parliament It began to be a problem and on 23 December 1993 he agreed law n. 548 which, among other things, are wholly allocated 15 billion lire for 1994 and 10 billion "For each year 1995 and 1996". Money, related to the percentage of patients, in the years to come, to 2016, as long as the current child ward at Umberto I has been done just something quick in 1999.
WHAT THE 20TH CHURCH OF YEARS AND RURAL AGREEMENTS ON ETHNICY – Lazio, in this regard, went into the budget immediately ad hoc property, in which every year 1 billion of lire was expected and then, since 2002, about 490 miles barley. Money, explain from the Department, "the Polyclinic it is always attracted"." Unbundled "property according to its Divisional Health Adviser, Alessio D 'Amato, respondent Colosimo responded during his query, just aimed at the time the last 6 budgets (those who belong to the Giunta Zingaretti). This means that money in those years has come to an end speakers of the hospital but then it was used in a different way, so much so that "distributed in 2018 would be used largely for cost of the staff "." The funding – he told IlFattoQuotidiano.it D-Amato's commissioner – in any way bonded The needs of an adult department for a cystic fibrosis patient but is provided to help the operation of the Advocacy Center, active for everybody the patient with this psychology ". So it should behospital to share part of the assets found in these two decades in the structure of its investment appropriate.
That's the way 300 people They have been suffering from cystic fibsticis in recent years, they have to continue to have a " going to his place instead of being funded by a specially funded department. "This adult population does not get it appropriate help or care", Read translation between Silvia Ranocchiari, a member of the Italian Cystic Fibrosis League Lazio, and the technical secretary of Nicola Zingaretti, as "it's obvious that there are problems an adult and the type of medical experts required completely different from the children's papers ". In addition," adults with cystic fibralis are fully cared for and treated today surreptitious from resources and parenting staff ".
PROJECT IN THE "LEVEL CUD" – Not enough, the "Fc Adult Project"Is it in" deadlock "according to president of Lifc Lazio, Silvana Mattia Colombi, which is a letter dated 15 February to & # 39; explains: "The children's ward welcomes the same environments Baby, children, adolescents, adults of all ages and also patients re-plan lungs and continue in sequence, and to prevent this situation promiscuity every step of it restricted accept it surgeries"And again:" Lifc Lazio wants to know it the future of the center and the decisions that Policlinico Umberto's directories expect to take promptly to resolve issues defined. If it was not considered that the project could be completed in a short period, all patients would be available for evaluating other solutions ". IlFattoQuotidiano.it tried several times to let me know vertices of the Policlinico Umberto I, writing both to the general guidance and to the health, e-mail service never answered.